Disease Registry and Disease Management Program for Emerging Markets - Conceptual

Data Capture for building a Disease Registry in emerging markets like India is always a challenge. Electronic systems can come to the aid of healthcare professionals to collect credible data from data sources. However technology has to be used where it makes most sense. For example electronic data capture directly from field maybe a far cry. So just make the healthcare workers collect clean paper data and let a BPO unit do the data entry.

Primary Data capture:

• Paper data – transcribed by data entry operator


• Mobile – SMS or email sent by MPW


• Mobile – SMS or email sent by Patient


• Mobile – Voice call done by Patient to a call centre that records the data
  

PHC/ Hospital sends the collated data to State level Disease Registry via:

• DTH linkup to Satellite and linked to the Registry


• Broadband linkup to the Registry
  

State level Registry is linked up to the Central Registry via Satellite

Full Redundancy can be built by Broadband and GPRS linkup to make sure alternative route is available if one fails.

Enterprise Master Person Index [EMPI] software along with the Registry will make sure that duplicate entries are not present. EMPI decides this based upon complex statistical analysis of parameters such as – name, age, sex, address, ration card number, DL number, any other identification number etc.

Once the Disease Registry has been built the Disease Management can also be one. Standard Care Plans can be pushed from the central location and the local doctor can customize it for the individual needs of the patient.

• Standard Care plans are pushed down from National level Registry to State level Registry to local hospitals.


• Care plans can be customized by local doctor.


• Clinical decision support software can help the doctor customize the care plan for the patient based upon combination of key indicators such as HBA1c levels, age and drug prescriptions of a Diabetic.


• These customized care plans can be pushed to the patient via paper mailer, mobile – text and voice.


• Patient Relationship Management software can keep track of care plan and drug compliance via reminders and alerts on mobile SMS, voice and mailers


• Call centers managed by nurses can also keep track of care plan and drug compliance of patients